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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Apr 14 3:02pm | Replies (9325)Comment receiving replies
I live in Ocala as well My sputum came back positive for Mac and they have sent me to a pulmonologist here and an infectious disease dr. At this point I am not happy about the regimen after reading everyone else's. I am going to try to find a specialist at Shands as well. I know they have a MAC clinic but I wasn't able to get in on first try. I'm going to keep trying now that I see what the locals offer. I will post if I have any success.
Rose
Replies to "I live in Ocala as well My sputum came back positive for Mac and they have..."
If you are looking for a new doc, and haven't been able to get into your "first choice" try to do a little pre-interviewing before starting - in my world, this means to get the appointment through the corporate "appointment center" then, with the doctor's name in hand, start looking up their on-line profiles. Follow this with calling their location directly - this can be hard to do, but worthwhile, and ask to talk to their nurse or PA or respiratory therapist about how much MAC they treat. If they are not sure, they can always ask the doc. That is how I found my ID doc, who led me to the right pulmonologist.
Sue
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Just remember that MAC is slow growing. Doctors who aren’t very familiar with MAC read the treatment guidelines which I think now say to start treatment right away. Unless you are very sick, you are probably okay waiting until you see a doctor that is knowledgeable and experienced in dealing with bronchiectasis and MAC. I was recommended treatment right away, but I waited until I was able to get into NJH and get their assessment. I am not on antibiotics at this time. I hope I won’t ever have to be but if I do, then I want to be monitored by a doctor who specializes in MAC.