Yikes, 2005 or right around there was exactly when the problems first surfaced and the implants were recalled. Did you not receive notice from your original surgeon or hospital to be tested some time between 20010 and 2012?

Let me say that I had the implants for 7 years, had all the symptoms your are reporting, except the optic nerve damage, and my other nerve damage was minor and has healed. I also had Graves Disease (hyperthyroid), tremors and heartbeat irregularities. Most of the symptoms subsided, and 11 years later, I am followed annually for Graves, tremors and rapid heartbeat.

I am not surprised by the lack of knowledge of chromium/cobalt metallosis - in the grand scheme of things, there are not a lot of us with this issue - especially at this late date. Many of us on Connect regularly experience doctors scratching their heads over our conditions. The complexity of the human body, and the breadth of things that can go wrong is truly mind-boggling.
Can you tell me why you are waiting for the second surgery?
Also, let me assure you that with your issues, and how long t has gone on, you need to be referred to rehab PT - someone who deals with multiple chronic issues, not just typical pot hip surgery exercises. This will be your best chance of regaining all you have lost.
Sue