← Return to Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Discussion
Comment receiving replies
@pmrsuzie

John, thanks for your comments. I will read the links tonight. I have been following an anti-inflammatory diet as much as possible. And I do limit sugar. I read every label. I have found it necessary to pick and choose from all these diets. Some foods and ingredients are hard to find and too expensive. These diets are all different.

I was splitting my prednisone dose but found that less than 5 mg made tapering difficult. I was down to 1 mg when the hand inflammation started. I thought the pmr was gone. The inflammation just went somewhere else, not my hips and shoulders. This is the second time I had a hand problem, and it elevates my WBC count. The first time the pain was so bad I cried in the Dr office. I ended up in the ER and they did every imaginable test for an infection, could not find anything and gave me 60mg medrol in an IV. Sent me to a hematologist. Had a lot of bloodwork but no explanation, my hand got better.
It's s rollercoaster ride for sure.
suzanne

Jump to this post


Replies to "John, thanks for your comments. I will read the links tonight. I have been following an..."

I keep a BP and med dosage records, not pain level. About diets. If something has too much fat or sugar or sodium to my liking, I modify the serving size, maybe have half a serving. I also follow the ' three bite rule' - anything I should not he eating, three bites is enough to at least satisfy the desire for something I crave but can only eat once in a blue moon.
suzanne