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MAC/NTM is Different for Everyone, Treatment might be different too

MAC & Bronchiectasis | Last Active: Jul 26 12:32pm | Replies (116)
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@rstel7272

I think it is important that we discuss the side effects of the potent pharmaceuticals we are on.
Many of the side effects can affect 5-40% of patients. Side effects can put you in the ER. ER Dr are not educated on these type of drugs. Pulminologists are not available for emergency calls. I know this first hand.

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Replies to "I think it is important that we discuss the side effects of the potent pharmaceuticals we..."
healthybon | @healthybon | Aug 21, 2023

Exactly local doctors and your doctors know nothing about our disease or how to treat anything about it

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sadies1mom | @sadies1mom | Jul 3 7:36pm

I agree. I have not taken the antibiotics. I recently had my second bronchoscopy in two years, with the pathology being sent once again to national Jewish Hospital. They will do the sensitivities test that I guess testS The bacterial load among other things to determine which of the current medications Might work best for me I will discuss with my Doctor Who I very much Trust whether it's worth the risk, because I'm stable. I'm sorry I have this disease the pain in the butt

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