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Sjogren’s Syndrome – Introduce yourself and meet others
Autoimmune Diseases | Last Active: Dec 9 10:31am | Replies (661)Comment receiving replies
Hi I'm new to the group. I was diagnosed 10 years ago. Also have fibromyalgia, rheumatoid arthritis, osteoarthritis, vertigo. Can't take pain meds due to stomach issues. Very difficult to manage. Any suggestions would be most welcome. Than you. Jacqueline 😊
Replies to "Hi I'm new to the group. I was diagnosed 10 years ago. Also have fibromyalgia, rheumatoid..."
Hi, Effiejacques, I have just recently been diagnosed with Sjogren's Syndrome too but I know I had it for awhile. It is obvious that some of my symptoms that I attributed to my other autoimmune diseases were the Sjogren's. Anyway, I got relief from the hurt-all-over but NSAIDs- don't- help pain with Low Dose Naltrexone. It has stopped it 3 times when I had to go off of the LDN for other reasons. Takes about 2 days for the pain to stop. Take a look at the research (PubMed is a good place.) And then see if your Dr. can be talked into it.
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I hope you find relief. I was just diagnosed a month ago with Sjogren's Syndrome....but I've suspected it for some time. If I hear of anything that might help you, I'll certainly pass it along. Many auto immune conditions predominately affect women and I'm afraid that years of only male researchers and bias have impacted the understanding of these diseases. There are lots of us now and hopefully the research and treatments will increase now that more women scientists are in the field.