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DiscussionPolymyalgia Rheumatica (PMR): Meet others & Share Your Story
Polymyalgia Rheumatica (PMR) | Last Active: Nov 18, 2024 | Replies (1907)Comment receiving replies
Replies to "Hi @pmrsuzie, Welcome to Connect. I'm sorry to hear that you have been dealing with PMR..."
John, thanks for your comments. I will read the links tonight. I have been following an anti-inflammatory diet as much as possible. And I do limit sugar. I read every label. I have found it necessary to pick and choose from all these diets. Some foods and ingredients are hard to find and too expensive. These diets are all different.
I was splitting my prednisone dose but found that less than 5 mg made tapering difficult. I was down to 1 mg when the hand inflammation started. I thought the pmr was gone. The inflammation just went somewhere else, not my hips and shoulders. This is the second time I had a hand problem, and it elevates my WBC count. The first time the pain was so bad I cried in the Dr office. I ended up in the ER and they did every imaginable test for an infection, could not find anything and gave me 60mg medrol in an IV. Sent me to a hematologist. Had a lot of bloodwork but no explanation, my hand got better.
It's s rollercoaster ride for sure.
suzanne