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Sjogren’s Syndrome – Introduce yourself and meet others
Autoimmune Diseases | Last Active: Dec 3, 2023 | Replies (621)Comment receiving replies
@cindylb. I’m so glad that Connect was helpful, especially when you needed it. Now let’s hope we can help again.
There are 2 other members who have talked about AIED. @beckyseattle and @tinea
I hope they’ll join this discussion and help you with answers.
These groups are lifelines, aren’t they? I hope you’ll continue to contribute your knowledge to other members who come along. Will you?
Replies to "@cindylb. I’m so glad that Connect was helpful, especially when you needed it. Now let’s hope..."
Yes of course.........always happy to repay the kindness and support I found on Mayo Connect. It's just too bad I'm in several of these support groups, ha ha.....so many illnesses, so little time. Sigh.
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Hi, I’m one of the AIED people. I’m a little hesitant to post, it seems like AIED is a gnat compared to the rest of your issues! No wonder you’re struggling with anxiety. AIED, at least as I experienced it, limits itself to your ears. I never had pain, or dizziness (others apparently do). Tinnitus was tempora. I am now deaf but have cochleAr implants in both ears. Not perfect, but I mostly get along fine.
It was a long and crummy trip to get to this point, tho. The beginnings of grappling with it all, and especially dealing wit attempts to cure it via steroids and methotrexate l, were horrible.
How can I help?