← Return to MAC/NTM is Different for Everyone, Treatment might be different too

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@maryjanechilds

The most helpful suggestions are strategies to cope with drug side effects, handling fear that comes with diagnosis and ways to stay upbeat and ward off depression. I’ve been on the big 3 for one month and can’t believe I’ve got so far to go. So far still feeling very sick from the MAC. I was told that it takes 2 to 3 to months to begin to see improvement. Was that y’all’s experience? Also, thanks for the discussion on weight loss. That’s a problem for me as well and would love to hear more food ideas to put on weight and counteract the queasiness of the antibiotics. One last question-my doctor says she won’t do another sputum culture until after 6 months and when (if) I get a negative culture I’ll need another year of antibiotics. Is that what most of you have experienced?
I’m very sad to be a part of this community but I’m thankful to have you all to help me through it.

MJ

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Replies to "The most helpful suggestions are strategies to cope with drug side effects, handling fear that comes..."

Hi MaryJane!
The first few months were rough for me on the Big 3.
I lost a lot of weight initially but holding steady @ 105 now( 13 months on treatment). I found that taking meds at night helped with nausea and other side effects. I also started morning fruit smoothies which helped with weight gain. I also take probiotics every morning which helps!
The 6 month sputum culture is standard. If you obtain culture conversion -(No NTM detectable) at that juncture, the clock starts and you are one year from that point. I attained in November of last year.
I hope this helps!
Dee