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I’m SO worried fiance 26 month LONG Covid - declining - ALONE
Post-COVID Recovery & COVID-19 | Last Active: Aug 2, 2023 | Replies (17)Comment receiving replies
Hi,
I’m really curious… how is everyone getting diagnosed with microclots? Although I have read so much about it NOT ONE of my doctors has even mentioned it and I wouldn’t have a clue where I could get this done. Im in MA. I agree, this is not a one size fits all …. I have tried SO many things and nothing is helping the debilitating fatigue, PEM, dizziness, insomnia and all the rest that goes along. I was checked for MCAS and supposedly I don’t need a low histamine diet, although I do take Zyrtec anyway. I tried NAC and it made me feel absolutely horrible as did LDN. I am in this since April 2020 and I live alone and can’t drive for more than 5 minutes on a good day.
It is terrifying. Friends have all given up. Probably think I’m just ‘ depressed’ as my PCP says. I just want to tell my PCP to ‘walk a day in my shoes buddy.’
I agree we should all share what has helped, even in just the smallest of ways but I don’t know of anyone that has recovered. I was wondering if denglish19 would mind if I ask questions? A low histamine diet is super restrictive… did you cut everything out? Plus, there are so many contradictions about certain foods as to whether or not they are high or low histamine. I tried B3 and I had such terrible crashes from it. I would love to know the other things you used. I’m willing to try anything like most of us right about now. Thank you all so much for all he other suggestions and I wish all of you the best. Much love.
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Lindy I got tested for microclots at Medhelp. After a lot of research I also think microclots are the answer to most long covid symptoms as it explains all of my symptoms which were very scary. I am sensitive to meds so took the more natural approach to see how I improve, if I get worse I will do the more aggressive one. I keep taking notes on what people are doing as I myself am a single parent and all of this is very daunting and costly which is why I shared what is slowly working for me as these supplements are widely taken by many without issue and all except one (the antihistimine with is a mast cell stabilizer) is available without perscription. I started slow and did not have a reaction to the Nac or Nattokinase after about a week (feeling worse at first is normal as you are detoxing so I did half dosing then worked my way up). If I stop taking my symptoms ramp up so I know they are working as the really troubling brain and all over pains are lessening day by day. With b vitamins try and find ones that are methylated in case you have a MTHFR mutation. Sounds like going slow is good for you. Little bits of movement or putting your legs up, sitting outside under a tree and in the morning or evening sun. Electrolytes, baby asprin and natokinnase may be a good start. I am not a Dr but this is what I started with and slowly added to. There are nattokinase with lower dosing then you can work up. Good luck..sending my best to everyone