I agree with you. People with MAC/NTM should not scare people with their own drug experiences in such negative ways. It's okay to say this or that drug didn't work for you, but we are all individuals with different needs and being positive through this Mayo outlet is a wonderful way to help people with similar, not necessarily identical, symptoms. We all need positive support.

People who respond the way they do in negative ways only increase the stress levels of others who may or may not have the same reactions. We need to follow the doctor's suggestions and see how we (you, in particular) feel overall, which may be far better than imagined. Doctors are doing the best they can at this point in medicine, sometimes with limited knowledge, and there is no pat solution because of the individual differences.

I become concerned about some of the connect.Mayo writers and their reactions to their personal experiences. This is a horrible disease and it does sometimes require us to seek outside help, like therapy, to see us through. I've been there and know how helpful one-on-one therapy is and, although I find the information I read online helpful to a degree, it should never be the answer to an individual health issue.