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Any experience with Temporal Lobe Epilepsy and MCI?

Epilepsy & Seizures | Last Active: Aug 3, 2023 | Replies (10)
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@rloc

Hi Chris and Santosha. Thank you so much for sharing your history and experiences. My wife has had neuropsychological testing which showed a decrease in cognitive functioning. Her PET was an FDG PET. I will definitely look into the Beta Amyloid PET as well. We are working on daily activities to help with brain functioning (playing piano, reading fiction, visualization, etc).
My wife is taking Lamictal for her epilepsy. Are you taking medication for the seizures? If so, do you notice improvement? Thank you again!

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Replies to "Hi Chris and Santosha. Thank you so much for sharing your history and experiences. My wife..."
Chris Gautier OR Santosha | @santosha | Aug 1, 2023

@rloc Hi again!
Good to hear from you!
Answering your questions, yes I am taking medication for my epilepsy: CBD (from medical cannabis) for my seizures. Besides that I do also control them through a gluten-free diet (it has reduced around 60% of my seizures), hatha yoga and avoiding as much as I can my triggers (for that I had to learn and understand my triggers). I have tried Lamictal, but though it has stopped my seizures, it has affected too much my sleep that I was worse. I had to stop it and change it. Unfortunately, none of the 5 AEDs I have tried worked for me, either because they caused more seizures or I could not tolerate the side effects. I have refractory epilepsy. What I feel is that none of the medications I have tried have brought any improvements in my cognitive functions. What helps me is to continue to be active and study (I have started another graduation this year at 52 years of age). Great that your mum is playing the piano, I have heard this can help much. Great that she also does read!
Chris (Santosha)

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