Learning Past Cause vs. Quality of Present Life?

Posted by Ray Kemble @ray666, Jul 13, 2023

Reading our posts, I see two populations or maybe three. There are those of us who, like Hercule Poirot, try to solve the mystery of what caused their PN. Then there are those of us who are more concerned with what might be done to lessen pain and slow––if not stop––the progression of their PN. There is a third group of us who try to do a little of both. Each pursuit can become a preoccupation, a preoccupation that can be really time-consuming. When I first got my diagnosis of idiopathic peripheral neuropathy, I thought only about How can be possible? What had I done wrong? Was it some long-ago injury? Poor diet? Could others in my family have had PN? Today I think less about those things and more about what I am doing in the here & now to manage my symptoms such as they are (chiefly terrible balance). I still think about what may have caused my PN (possibly my years of hard drinking when I was in my 20s and 30s?), but mostly I'm thinking about what I can do today to lessen PN's intrusion on my day. I was wondering how others divide their time in thinking about their PN. More about what may have caused it? More about what you can do to make your life more livable today? Or a little of both?

Interested in more discussions like this? Go to the Neuropathy Support Group.

I use Restasis eye drops twice a day (prescription). I also have oral Pilocarpine to use for dry mouth (prescription). I take that 3times a day when my mouth is really dry. I also have a supplement capsule made by Theratears, over the counter, which I always forget to take. It’s 3 big capsules. These things keep my dry eyes and mouth under control. Before my SFN diagnosis I was tested several times for Sjogrens.

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@ray666

Hi, leelees (@leelees)

I hadn't noticed your reply. I'm sorry. However, you don't say if you're seeing a neurologist. I'm guessing you are, or otherwise you might not be calling your numbness a neuropathy. I went for years with an ever-worsening balance, but not even my primary doc (who is a good primary doc) thought to suggest a neuropathy or to refer me to a neurologist. The symptom you do mention is numbness. My neurologist tells me I have some numbness in my feet, and that's why I have such poor balance, but so far it has not progressed. The advice it seems you're looking for will be best given by someone dealing with progression. I am sure someone will post soon. Stick around. You might try your question under a different topic heading. Or create a new topic. That might be best. Good luck!

Ray (@ray666)

Jump to this post

Thanks so much

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