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@nyxygirl

@mikeshell HI Mike ! i am curious about your comment from 5mg to 3 mg -- how quickly did you taper down ? were you ever at 4 mg ? ( i am now at 10mg /day for next month ,before going to 9 mg) sigh ! Are your "aches" distinguishable from the classic morning stiffness /pain of PMR ? lately pain in my right leg is annoying - but i have NO "PMR" pain stiffness.

do you recognize yourself in one of these cohorts of patients in UK that report pain for range of two years
[Rheumatology (Oxford)
. 2020 Aug 1;59(8):1906-1915. doi: 10.1093/rheumatology/kez533.
Longitudinal clusters of pain and stiffness in polymyalgia rheumatica: 2-year results from the PMR Cohort Study Sara Muller first author ]
Five clusters were identified. One cluster represented the profile of 'classical' PMR symptoms - "rapid and sustained "and one represented sustained symptoms that may not be PMR. The other three clusters displayed a partial recovery, a recovery followed by worsening and a slow, but sustained recovery. Those displaying classical PMR symptoms were in better overall health at diagnosis than the other groups.

have you ever seen the videos in this site ? PMARand IL6.com - go to resources tab and scroll down to listen to john stone and contraindications of prednisone . Why would an NSAID be considered , in place of GC ?
i assume you are familiar with the role of IL6 in PMR? have you asked specifically if you are now a candidate for Kevzara ?
knowing what others are going through sure helps !

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Replies to "@mikeshell HI Mike ! i am curious about your comment from 5mg to 3 mg --..."

Thank you so very much for this information. Knowledge is the key ingredient to making smart choices and decisions. My reduction from 5mg to 3mg has been relatively slow. I took 5mg each day for one month, then alternated between 5mg one day, 4mg the other day for one month. Then, 4mg each day for an entire month, then back to the same routine of alternating 4mg/3mg respectively. I have stayed on 3mg for the past 3 months and now having more issues with soreness, stiffness in shoulders and hips, bouts of fatigue and lightheadedness. I am considering increasing back to 5mg as I felt like I could tolerate my PMR at that level.