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I’m SO worried fiance 26 month LONG Covid - declining - ALONE

Post-COVID Recovery & COVID-19 | Last Active: Aug 2, 2023 | Replies (17)
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@car0

I’m going out on a limb, here… but I wanted to suggest you keep this in mind—
Be very selective in your reading—even to these chats. I’ve heard people say “ so what you need to do… is ___, and now I’m cured” or “so much better.”
And I believe. I’m sure it worked —-FOR THEM.
But. If there was a one “thing” or approach that fixed or explained Long Covid? We ALLLLL would have been on it years ago! We are all so anxious to feel better…But I’m just suggesting that if a chatter says “do this” and you decide to try it? Do not become discouraged if it doesn’t work. I’ve written this in another chat, but from these chats I’ve seen threads from people who have gained weight unexplained & others who have lost weight to dangerous levels; had an inability to swallow because of too much post nasal or etc/ people needing help for incredibly dry throat; people sleeping or sleepy all the time/ folks with EXTREME insomnia. Point is— it is all Long Covid, and it is effecting each of us differently— and in a body specific way. Body Specific. That means, as far as I can tell? That each body will have their OWN personal symptoms that need to be dealt with.
(Also why, in my op., drs aren’t getting it. It is not one pill fits all. )
When you get discouraged, reach out.

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Replies to "I’m going out on a limb, here… but I wanted to suggest you keep this in..."
karen8 | @karen8 | Aug 1, 2023

Oh for Pete sake ! I just posted a long note trying to explain everything and said what I was trying to say - hit the post button and …. Nothing !! Must have gotten erased - so will try later😬frustrating

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karen8 | @karen8 | Aug 2, 2023

Thank you for all the comments and suggestions - I/we appreciate any recommendations and I realize it certainly is different for we every person. I posted a long comment yesterday but managed to erase it - so I’ll try a quicker note!
He was never hospitalized - April 2021 he had your basic bad flu - no big deal . Approx 3-4 weeks later is when it all started changing.
His neurological deficits are quite severe ( as in I leave notes for him to brush his teeth. Deodorant ,water in coffee pot)forgets everything all the time - did neuropsych. Evaluation( 5 hour test) back in January and showed definite decline in executive functioning and memory . He barely drives because he is not comfortable - if he has to - even five minutes away , he will plan out his route . We have tried many things - ivermectin/LDN/Atorvastatin/fluvoxamine/prednisone/ Wellbutrin/ stimulants/ now have him on Aricept !supplements ( Quercetin-Zinc-NAC - MitoQ -omega)
His GI issues are awful - in bathroom easily 7 x a day - I can always hear his stomach make noises - seen gi doctor.
His long Covid doctor is through UF Shands - done many tests but pretty much sends us to this or that doctor. His cardio crp numbers are high as is d-diner —— however this does not seem to concern anyone even though it points to inflammation. She has been more concerned with his depression and anxiety and having him seen about that . Of COURSE he is ! Ok so I did write too k uh but as all know - there is so much involved and everybody is different and unless you have a loved one with it - people think you are really exaggerating ….
“ so, gosh can he not even do anything ?”
We are in our 50’s and at a total loss —— I miss him - he misses him - he has gotten to the point he thinks this is how he will always be …. Very disheartening to see hm day in and out …. Thank you for reading , it helps. Best to all out there🌺

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