Triple Negative Breast Cancer: What treatments are you having?

Posted by thielmann1 @thielmann1, Dec 9, 2021

I have just been diagnosed with Triple Negative Breast Cancer after having Estrogen Positive Breast Cancer for 21 years. Is anyone familiar with this diagnosis and treatment that you are having for it?

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@drummergirl

I also had TNBC. Chemo, then surgery (all clear, except some minimal lympho vascular invasion). The double mastectomy I had may be helpful to clearing the lympho vascular invasion. I then had another round of chemo (Taxol/carboplatin). I was also dealing with ATM gene. The new protocol is to test all TNBC for gene mutations. I too have the numbness in my toes and I wondered about the glutamine supplements. First I have heard about this. What brand and dose? Thank you!

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It was from a sports retailer, but any glutamine will work. I mixed one scoop with 8 ounces of apple juice. I hope this helps.

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@mkb4435

What is "red devil"? Somehow I don't like the sound of it... Chemo hasn't been determined yet for me, if/what kind.

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It is called red devil because of its color. It is very hard on the body and causes extreme nausea.

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Newly diagnosed TNBC I have seen the oncologist once and the discussion was overwhelming I’m not even sure what stage I have. I meet with him again August 6 and this group has been so helpful as to what questions I need to ask.
I will also have a PET scan on July 31 and start immo therapy and chemo on the 6th so glad I found this site

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@lynnj3

Newly diagnosed TNBC I have seen the oncologist once and the discussion was overwhelming I’m not even sure what stage I have. I meet with him again August 6 and this group has been so helpful as to what questions I need to ask.
I will also have a PET scan on July 31 and start immo therapy and chemo on the 6th so glad I found this site

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What is TNBC stand for? It is not fun going through all of this I know! I have invasive lobular BC on one side. Thinking good thoughts for you.

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@lynnj3

Newly diagnosed TNBC I have seen the oncologist once and the discussion was overwhelming I’m not even sure what stage I have. I meet with him again August 6 and this group has been so helpful as to what questions I need to ask.
I will also have a PET scan on July 31 and start immo therapy and chemo on the 6th so glad I found this site

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Welcome @lynnj3, I moved your post to this existing and active discussion:
- Triple Negative Breast Cancer: What treatments are you having? https://connect.mayoclinic.org/discussion/triple-negative-breast-cancer/

I did this so you can read previous posts and connect easily with other members with triple negative breast cancer (TNBC) like @thielmann1 @kk57 @olg1 @drummergirl @bpknitter53 @rahrah6263 @leolion811 @mkb4435 and more.

You've certainly come to the right place to un-pack that sense of overwhelm and prepare your questions for your upcoming appointment next week. What immunotherapy and chemotherapy regimens will you be starting? What questions do you have from others in the group who have been there?

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@lynnj3

Newly diagnosed TNBC I have seen the oncologist once and the discussion was overwhelming I’m not even sure what stage I have. I meet with him again August 6 and this group has been so helpful as to what questions I need to ask.
I will also have a PET scan on July 31 and start immo therapy and chemo on the 6th so glad I found this site

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@lynnj3 things are moving quickly for you. Keep us posted! It is overwhelming but those I know who have gone through the immunotherapy and chemo found it doable in the end and I hope the same is true for you.

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@colleenyoung

Welcome @lynnj3, I moved your post to this existing and active discussion:
- Triple Negative Breast Cancer: What treatments are you having? https://connect.mayoclinic.org/discussion/triple-negative-breast-cancer/

I did this so you can read previous posts and connect easily with other members with triple negative breast cancer (TNBC) like @thielmann1 @kk57 @olg1 @drummergirl @bpknitter53 @rahrah6263 @leolion811 @mkb4435 and more.

You've certainly come to the right place to un-pack that sense of overwhelm and prepare your questions for your upcoming appointment next week. What immunotherapy and chemotherapy regimens will you be starting? What questions do you have from others in the group who have been there?

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Honestly I did not even think to ask what what immunotherapy or or chemo regime I’ll be on , will for sure add it to my list of questions.
One thing i’m wondering now is what kinds of protein did anyone have on hand after the infusion? Protein bars? What are something that worked best ? How prepared should I be?

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@lynnj3

Honestly I did not even think to ask what what immunotherapy or or chemo regime I’ll be on , will for sure add it to my list of questions.
One thing i’m wondering now is what kinds of protein did anyone have on hand after the infusion? Protein bars? What are something that worked best ? How prepared should I be?

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@lynnj3 - I think I was told to try to have between 50-75% of my body weight in protein a day - so I started each morning with a very high protein shake. I'd use a high protein milk (Fairlife) with plain greek yogurt, I'd add a protein powder to the drink and frozen banana, or berries and would get probably close to 30-45 grams of protein in that meal alone - so the rest of the day I just tried to eat other things that were also high in protein. I did keep on hand high protein snack bars. My numbers stayed really good (except one weekend when we went away and my numbers weren't high enough for treatment); but otherwise I was able to do my treatments. I also researched vegetables and other foods that were high in protein. I did a fair amount of organic chicken, and quinoa (which I had never tried and found some pretty good recipes to do in the instant pot).

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Question, my oncologist said I would have 6 to 8 weeks of infusion and then evaluate should I advocate for a port(I think that’s what it called) or just go with the regular IV ?
Or will my infusion team be the lead on that?

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@lynnj3

Question, my oncologist said I would have 6 to 8 weeks of infusion and then evaluate should I advocate for a port(I think that’s what it called) or just go with the regular IV ?
Or will my infusion team be the lead on that?

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Definitely a port!!

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