Connect
← Return to Non-Length Dependent Small Fiber Neuropathy
Discussion
Non-Length Dependent Small Fiber Neuropathy
Neuropathy | Last Active: Apr 18 7:03pm | Replies (131)Comment receiving replies
Thank you for understanding and sharing your story. I think that it is safe they are checking your FGFR3 results again. This is my 6th neurologists! The other one, did not care at all.
How efficient is the pain pumps?
I have been on LDN for 5 months. Up until 2 weeks ago, it was removing 95% of my symptoms. So I think you should try it. I don t know why it stopped working for me. But I am getting worst every day! And I am really losing hope!
You are lucky to have found a PT who was able to help you. I have seen so many these past 2 years and have gotten zero relief at all. I live in NY, I am not sure who to go to anymore. I have spent so much money and hope on useless people!
Is there a way to talk more privately here or everything is done though that chat?
Replies to "Thank you for understanding and sharing your story. I think that it is safe they are..."
Connect
You can direct message someone on this by clicking/tapping on the person icon at the top right corner of
the screen. I’m on my phone right now and can’t remember if it looks different on a computer.
You should see an option for “messages,” and you can send some a direct message that will only go to the user’s inbox and they’ll receive an email notification. But it won’t be posted publicly.