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Anyone with an insulinoma have only therapies instead of surgery?
Neuroendocrine Tumors (NETs) | Last Active: Aug 14, 2023 | Replies (21)Comment receiving replies
I would love a list of tricks for helping with the numbers. I only just started Everolimus so it hasn't been long enough for anything to get "stable" .
Right now I have a libre 2 on my arm that alarms when it goes too low and I keep honey, glucose pills, glucose gel and the inhaler (for emergencies because I have gone unconscious a few times from low blood sugar) next to my bed for when my numbers tank.
I have had to get used to a new diet because I've always hated sugar and sweet stuff and the only carb I liked was potatoes so it's been a huge change, and any help is nice because this is all really new.
I have started to keep a journal to see which foods do certain things, but it's hard to see if it's my medicine or what I'm eating honestly.
Thank you for any help and for sharing your story.
Replies to "I would love a list of tricks for helping with the numbers. I only just started..."
Hello
Believe it or not...about two to three teaspoons of cornstarch in tea(just what I chose) will
bring up the numbers and steady them for a bit. I use to have that after lunch to hold off my drops till later. I also would have that at night before bed to help get thru the night.
I eat what is called an extend bar (extend nutrition bars)at night before bed....keeps my numbers steady throught the night. I like the yogurt and berry but there are other flavors.When my number was too low before bed I had a tablespoon of peanut butter....that always works!!
I keep a small bottle of ginger aisle next to my bed...few sips raises the numbers.
I too wear a dexcom system which monitors the numbers.I try to shoot for a higher number before bed and then eat that bar.
Try the corn stach...Im not using it much now,but it really really helped!! They did say better in something cold like milk but I coukdnt do it...I went f the tea.
Let me know if there is anything else!!
My best to you!
Forgot one more thing....when I take my medications I take them with orange juice...the juice raises the numbers and byes me time time to eat!!
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Cornstarch added to an evening snack like pudding or chicken or beef bouillon did help my husband when he was struggling with his numbers overnight. Mix a tablespoon with a little cold water before adding to food so it doesn’t lump. Our best to you.