Accelerated PN , possibly from PT?

Posted by paul14 @paul14, Jul 29, 2023

I have been experiencing sensory loss in my feet at an accelerated rate in the last couple weeks. Both feet are nearly completely numb. I have been doing PT twice a week and wondering if it may be contributing to this. Most exercises are for gait and balance, walking with one foot in front of the other, standing on one leg, calf stretches, walking in figure eight, backwards, etc. Can PT do this?. Most people I speak to say no. I also wear OrthoFeet footwear for neuropathy, I bought a size larger and wider to avoid tight fit and friction. Every time I walk even in the house, with or without shoes, I experience tingling and inflammation on the soles of feet. I have asked neurologists and they say it would take major impacts/injuries to feet to cause nerve damage and that PT wouldn’t do it. What is your experience?

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I just wanted to thank all of you for sharing your experiences with PT and neuropathy. I struggle with feeling like I’m not doing “enough,” even though I know and discussed with my PT why it’s important for my body and nervous system specifically to grade exposure to activity. But I still always felt like I was “weird” or slow. So it’s great to be reminded that what works for me and my body is what’s best, and that there are others who’ve benefited from a similar strategy. Thank you.

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@emo

I just wanted to thank all of you for sharing your experiences with PT and neuropathy. I struggle with feeling like I’m not doing “enough,” even though I know and discussed with my PT why it’s important for my body and nervous system specifically to grade exposure to activity. But I still always felt like I was “weird” or slow. So it’s great to be reminded that what works for me and my body is what’s best, and that there are others who’ve benefited from a similar strategy. Thank you.

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I had abrupt neuropathy (radiculopathy) symptoms upon the large rupture of a herniated lumbar disc. I saw an Orthopedist, had MRI testing, and was sent to PT within a week. The PT emphasized and re-emphasized the role of the brain in pain management. He said the pain signals come up to the brain as an “explosion”, the brain can’t differentiate/pinpoint the location, just interprets it as “PAIN”. The PT said it’s important not to open “pain pathways”, as the brain will focus on the “explosion” and accelerate your sense of pain. Sounded weird to me, but I decided to trust him and then/now I primarily use visualization and calculated fury to beat back any opening of a pain pathway. When I’m woken up by severe lower leg pain (sledge hammer hitting it type), my most successful visualization is to fiercely envision a blow torch of fire blasting back down that pathway, driving the signals back. Five minutes of that and the pain is gone. I’ve also imagined little friendly aliens with phasers blasting my calf muscles. I tried “relaxing at the beach” visualizations, it that didn’t work for me.
The PT emphasized- this is not true pain from a true cause, it’s your brain’s interpretation of the explosion of false signals coming up.

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@centre

I had abrupt neuropathy (radiculopathy) symptoms upon the large rupture of a herniated lumbar disc. I saw an Orthopedist, had MRI testing, and was sent to PT within a week. The PT emphasized and re-emphasized the role of the brain in pain management. He said the pain signals come up to the brain as an “explosion”, the brain can’t differentiate/pinpoint the location, just interprets it as “PAIN”. The PT said it’s important not to open “pain pathways”, as the brain will focus on the “explosion” and accelerate your sense of pain. Sounded weird to me, but I decided to trust him and then/now I primarily use visualization and calculated fury to beat back any opening of a pain pathway. When I’m woken up by severe lower leg pain (sledge hammer hitting it type), my most successful visualization is to fiercely envision a blow torch of fire blasting back down that pathway, driving the signals back. Five minutes of that and the pain is gone. I’ve also imagined little friendly aliens with phasers blasting my calf muscles. I tried “relaxing at the beach” visualizations, it that didn’t work for me.
The PT emphasized- this is not true pain from a true cause, it’s your brain’s interpretation of the explosion of false signals coming up.

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I think we’ve both been taught the same thing, but I never took the time to imagine it that way! Lol, Beach visualizations don’t really work for me either, not for when I’m actually in pain anyway.

That’s a great reminds though that pain is a message sent from the brain, based on an interpretation that something, somewhere is a threat—and sometimes it gets that calculation wrong or gets stuck on high alert.

I try to remind myself while it’s important to treat a different root cause of pain if there is one and we can find one, we all have the ability to address the pathways of pain and try to close them off, whether that’s with visualization or other means. But I also feel it’s hard to come around to accepting or acknowledging that, and not everyone’s ready. It’s not really the cure people want.

I’m glad that even if I was skeptical, I in the end trusted my PT. What else did I have to lose? Thanks for sharing that.

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@pacer3702

Any pressure on the bottom of my feet such as from walking on hard surfaces or exercising aggravates the nerve pain. Consistent with the other posts above, I'm working with my physical therapist to advance my activity extremely slowly. For example, I started with walking outside only 6 minutes every other day. Even that much aggravated the nerve pain in my feet at night. So, I'm holding at that level until my tolerance improves.

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I have been exercising my toes just a little in the morning and also gently manipulating each toe back and forth. I am hoping this might help circulation and muscle growth.

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@centre

I had abrupt neuropathy (radiculopathy) symptoms upon the large rupture of a herniated lumbar disc. I saw an Orthopedist, had MRI testing, and was sent to PT within a week. The PT emphasized and re-emphasized the role of the brain in pain management. He said the pain signals come up to the brain as an “explosion”, the brain can’t differentiate/pinpoint the location, just interprets it as “PAIN”. The PT said it’s important not to open “pain pathways”, as the brain will focus on the “explosion” and accelerate your sense of pain. Sounded weird to me, but I decided to trust him and then/now I primarily use visualization and calculated fury to beat back any opening of a pain pathway. When I’m woken up by severe lower leg pain (sledge hammer hitting it type), my most successful visualization is to fiercely envision a blow torch of fire blasting back down that pathway, driving the signals back. Five minutes of that and the pain is gone. I’ve also imagined little friendly aliens with phasers blasting my calf muscles. I tried “relaxing at the beach” visualizations, it that didn’t work for me.
The PT emphasized- this is not true pain from a true cause, it’s your brain’s interpretation of the explosion of false signals coming up.

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Thanks for sharing your experience. My PT hasn’t suggested anything like that since I don’t have a lot of pain, just numbness. She mostly concentrates on balance since my feet are numb. I am flummoxed by the nerve tingling, the cold then sensory numbness that follows. This now happens even at rest when I flex my foot or toes. It makes you reluctant to even move. I’m experiencing it sitting down on the front porch while writing this response.

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My doctor told me the most important thing is walking. I try to go for walks
everyday. It keeps you moving which is so important.

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@dbeshears1

For me, I learned that overuse during PT (or any other activity) contributes to fatigue and that my PN requires me extra time to recover. My therapist agreed that we needed to work on eliminating the “day after” effect if PT, as it should be more seamless while helping us build strength and brain/muscle memory. She would modify the activities or reps to help my PN. Open communication is key - we start each session with reviewing how I felt after the prior session. One thing that does not work for me under any terms are exercises that stress my toes. I can stand on heels, but trying to be a ballerina on toes or pushing weights with them leave extra painful and numbing effects for many days, so we’ve had to come up with a different way of helping engage that part of the foot. We’re all different, but if you find that an activity or exercise leaves you worse off vs better, please let your therapist know as there may be a more suitable exercise.

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Walk...walk.... walk Dr says that's the most important
thin.

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@paul14

Thanks for sharing your experience. My PT hasn’t suggested anything like that since I don’t have a lot of pain, just numbness. She mostly concentrates on balance since my feet are numb. I am flummoxed by the nerve tingling, the cold then sensory numbness that follows. This now happens even at rest when I flex my foot or toes. It makes you reluctant to even move. I’m experiencing it sitting down on the front porch while writing this response.

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Try to walk..even if it's short distances at first. I sometimes have to take Advil or Tylenol. I also take Tai
Chi for balance. Attitude also has so much to do with it.
We can sit on the porch and complain or get out and do
things to get on with our lives.

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@leelees

Walk...walk.... walk Dr says that's the most important
thin.

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Agree, I think doctors would encourage walking as being very beneficial for those who can! And for those with a neuropathy effect that disables them differently, any leg or muscle strengthening that keeps blood flowing and can allow optimizing mobility and health. Keep moving as Ed says, in ever which way and direction we can!

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@centre

I had abrupt neuropathy (radiculopathy) symptoms upon the large rupture of a herniated lumbar disc. I saw an Orthopedist, had MRI testing, and was sent to PT within a week. The PT emphasized and re-emphasized the role of the brain in pain management. He said the pain signals come up to the brain as an “explosion”, the brain can’t differentiate/pinpoint the location, just interprets it as “PAIN”. The PT said it’s important not to open “pain pathways”, as the brain will focus on the “explosion” and accelerate your sense of pain. Sounded weird to me, but I decided to trust him and then/now I primarily use visualization and calculated fury to beat back any opening of a pain pathway. When I’m woken up by severe lower leg pain (sledge hammer hitting it type), my most successful visualization is to fiercely envision a blow torch of fire blasting back down that pathway, driving the signals back. Five minutes of that and the pain is gone. I’ve also imagined little friendly aliens with phasers blasting my calf muscles. I tried “relaxing at the beach” visualizations, it that didn’t work for me.
The PT emphasized- this is not true pain from a true cause, it’s your brain’s interpretation of the explosion of false signals coming up.

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Good morning @centre. Thank you for helping other members learn about their condition. You must have great knowledge and understanding as an OT. Both of my MFR therapists are OTs.

Now for my question. I have recently gone through a lot of tests to try to determine why I was experiencing significantly elevated pain and more frequent leg "give-ways". I was told that my SFN was caused by severe radiculopathy following accidents and surgeries. Is that what you mean by "abrupt neuropathy"?

May you be safe, protected and free from inner and outer harm.
Chris

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