Unfortunately, no luck in finding a doctor or support. I saw a new PCP and she knew absolutely nothing about LT Covid and how to help me. Referred to me GI, but I've been down that road numerous times and unless you are working with a GI Doc that knows about Covid and how it wreaks havoc on our gut, they will order the basic endoscopy, colonoscopy, HIDA scan which I all had done. I wish I could find a good Integrative/Holistic MD, or someone who knows about LT Covid as I wither away.
In regards to food, I already have it delivered as well as an Rx's. I drink two organic protein drinks per day along with eating every hour.
I spoke with another member, and she said she is dealing with almost same issues with weight loss and found a GI Doc familiar with LT Covid and diagnosed her as having basically paralysis of the esophagus and gut; hence not taking in any nutrients. Doc told her Covid really starts a an inflammation nightmare everywhere in our body, stemming from the microbiome changes in our gut, leading to lung issues, organs, etc. So it's not that it's a lunch issue as previously thought, it's what the inflammation does to the brain (brain fog) and our other organs. Makes total sense.
I just saw a youtube Doc, Dr Levine (sp) who figured LT Covid cause and treatment out and Dr. Hyman. I say he spot on! I wish I could see him instead of wasting all my time and money at Mayo.
Another member told me to make sure to eat a low histamine diet, take the following which helped him immensely. Your thoughts? Have you tried this?
1. drinking Liquid IV in your water (but water it down A LOT like in a 64oz container- one packet for the whole day - sip it all day long). Along with your electrolytes
2. B-3 niacinamide, non-flushing form. 500mg x 4 per day. Yes, 2,000mg DAILY. This will allow your body to produce more NAD again. NAD is absolutely needed for ALL cellular function and body system function. Between those two things, for one week, I think you will see some difference. And if you can eat, this should help you absorb the nutrients that you need.
3. magnesium and potassium for heart palpitations).
4.For the anxiety/overwhelm, possible depression take TAURINE, 500mg dose x 2-3 per day.
Hope I hit right key responding to you as saw issue answering before and doubting Im doing site right now 🙃. You have dealt with so much and handled such difficult uninformed opinions with such grace. I have tried as so many others to say our brains/nervous system/gut are not functioning as medical professionals routinely evaluate. Yes I have lung nodules, brain lesions and mass, etc but my saliva glands not working and lungs physically not moving to take in air dont fit their boxes to know what to do. I too have seen many different doctors, live in research hospital mecca, ran multi specialist practices over 20 yrs. to know questions/sources to no avail, and sadly your remarks about state of healthcare right on. That said please keep going at slow healthy pace finding steps forward and listening to your body to find specific healing things for you. I must share please that rest is critical in this healing and just typing, reading, etc can continue or exacerbate/create new symptoms☹️ My opinion, please save your energy for yourself resting instead of responding to those who luckily haven't had the experiences that brought most here🌈 I was sincere in my prior post about nutrition critical which is different for each person and truly hope we can assist you to find answers as doing this answer taking 2 hrs shows we care🙏
Hope I hit right key responding to you as saw issue answering before and doubting Im doing site right now 🙃. You have dealt with so much and handled such difficult uninformed opinions with such grace. I have tried as so many others to say our brains/nervous system/gut are not functioning as medical professionals routinely evaluate. Yes I have lung nodules, brain lesions and mass, etc but my saliva glands not working and lungs physically not moving to take in air dont fit their boxes to know what to do. I too have seen many different doctors, live in research hospital mecca, ran multi specialist practices over 20 yrs. to know questions/sources to no avail, and sadly your remarks about state of healthcare right on. That said please keep going at slow healthy pace finding steps forward and listening to your body to find specific healing things for you. I must share please that rest is critical in this healing and just typing, reading, etc can continue or exacerbate/create new symptoms☹️ My opinion, please save your energy for yourself resting instead of responding to those who luckily haven't had the experiences that brought most here🌈 I was sincere in my prior post about nutrition critical which is different for each person and truly hope we can assist you to find answers as doing this answer taking 2 hrs shows we care🙏