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Neuropathy in both feet

Neuropathy | Last Active: Aug 12, 2023 | Replies (34)

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@kensiejames

I have had neuropathy consistently in my feet for the past 4 years. Started around the toes and soles of my feet. It was attributed to my Rheumatoid Arthritis, so I just lived with it. This year I noticed the tingling making its way up my calves. So off to the neurologist I went . There was no definitive diagnosis. Doctor recommended Cymbalta 🤷‍♀️, which makes no sense.
I am not in any pain, just 24/7 tingling & numbness. It’s worse at rest. My RA meds are minimal. I have been on Plaquinil since 2012.
My RA is well managed, considered mild-moderate. Blood work has always been normal. I am considered zero negative.
I appreciate any recommendations or thoughts on what direction to take here. Something has to be causing this numbness.

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Replies to "I have had neuropathy consistently in my feet for the past 4 years. Started around the..."

Hi @kensiejames, I think you and I are among the 20% or so of the so called lucky folks with neuropathy to only have the tingling and numbness and no neuropathic pain. I shared my neuropathy journey in another discussion here - https://connect.mayoclinic.org/comment/310341/. There is another discussion where members are discussing the numbness only symptoms that you might find helpful:

--- Neuropathy: Numbness only, no pain: https://connect.mayoclinic.org/discussion/neuropathy-numbness-only-no-pain/

I think it's great that you are able to manage your RA with the meds minimal. The Cymbalta doesn't make sense to me either, especially if you have no pain associated with the neuropathy in the feet. If you haven't already seen this article, you might find it helpful.
--- Rheumatoid Arthritis Neuropathy: Numbness and Tingling: https://www.healthcentral.com/condition/rheumatoid-arthritis/rheumatoid-arthritis-neuropathy

Was your neurologist able to rule out disc compression, or did you ever get evaluated by a PT or physiatrist?

I have small fiber neuropathy (meaning the sensory nerve fibers are affected, but it generally doesn’t cause weakness and gait instability which is usually caused by the more common large fiber neuropathy). This is the type associated with autoimmune or chronic pain conditions (I also have an inflammatory arthritis), and a large percentage have no known cause.

I still have it, but it’s not as severe as before. But when I saw neurologists, they didn’t catch that I was having referred burning, numbness and tingling from disc compression in my low back. I’d had a spinal fusion when I was age 11, but this can happen as you age.

A PT realized it and prescribed simple stretches to do regularly to help create more space between my vertebrae, which relieved the burning. When we’re leaning forward and sitting so much of the day, the vertebrae smush together with the disc in between, kind of like an ice cream sandwich when you’re pinching it together on one side. That compresses the disc and sends nerve pain to the parts of your body where it’s connected

Or you could try the stretches at home to see if it helps; that’s basically what we did in PT. You can use any variation of sphinx or cobra pose from yoga, if you don’t want to do it on the ground you can look up modifications to do it upright.

I wanted to share it because it’s one thing that didn’t come up in the doctor’s office for me. I’m guessing you’ve already gone through this but other causes are impaired glucose tolerance/prediabetes, celiac disease or gluten sensitivity, etc. A neurologist told me about the connection to gluten intolerance and since I reduced gluten I’ve seen an improvement.

I take low dose naltrexone, which I’ve seen here some people say it helps their neuropathy. Cymbalta gets prescribed for nerve and other chronic pain because it’s supposed to alter the way your brain sends pain signals.