Hi, my name is Liz, and I'm from Canada. Here's my story.
I was diagnosed with this cancer in March 2022. It was a massive outer tumor. It started at the back of the vulva, and went right back to the anal sphincter. It was a very quick growing tumor, and incredibly painful. I went to Juravinski Hospital for my treatment, which began with Lymph node removal (half of them in the groin only. It had begun to spread there), and then 30 rounds of radiation, and 6 rounds of Chemo. Also wound therapy, since the back of my thighs and buttocks were badly burnt from the radiation.
I found out in December of 2022 that I was tumor free. I was told that the aggressive tumors usually respond well to aggressive treatment, so I guess I am a lucky S.O.B. My treatments ended in September of 2022. So it's been 10 months since they ended. I've found that I'm still incredibly tired, and nauseous, and was wondering if that was the same for anyone else? I returned to work (retail) in April 2023, and can still only manage 2 4 hour shifts before I'm completely wiped out.
I do have some issues I was wondering of anyone else is having. I find that my skin down there is incredibly delicate now, and even wiping with a bit too much pressure will make the skin bleed. Is this normal for anyone else?
Any thoughts or responses are appreciated. I'm doing as well as can be expected emotionally (still angry, anxious, and frustrated) but the physical symptoms are whats bothering me right now.
Hi Liz. I’m still very early in the process so I can’t really comment on long term side effects. Did you talk to your doctor about the bleeding? I was having an issue with some residual bleeding and they recommended that I start using the silvadene cream that they gave me post op. It seems to have done the trick.
Good luck with your recovery.