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Anyone have cancer with unknown primary?

Cancer | Last Active: 6 days ago | Replies (155)

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@mattydlb

Sounds like you have found the best treatment plan for your recovery.
How many tests and how long all up do you think it took to find the right outcome?
I still think he needs more tests to hopefully find the primary source. Think next one he needs is a colonoscopy.
He has his second opinion specialist appointment on Friday.
Can you think of any questions that may need to be asked?
How long have you been having treatment for?
Thank you for your help and appreciate all your advice.

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Replies to "Sounds like you have found the best treatment plan for your recovery. How many tests and..."

I had my scan that detected the enlarged lymph nodes beginning of October 2022. I had over a dozen biopsies, along with many scan and scopes for several months. they didn't start my treatments until January 23, 2023, (almost 4 months). They also surgically removed a lymph node and sent it to a company call Tempus labs with the hope that they would help identify. it came back as 70% cervical. Everyone thought it was strong enough result to just treat for that.
I have finished my treatments and had my first scan with was clear. Do you know what the cell type is. In my case this help them go down paths of where that cell type can only be. Mine again was Squamous and would only be found in throat, cervix and anal/rectal. that provided areas to look and direction. To me that would be the biggest question.