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DiscussionPMR diagnosed but now headache for almost a month.
Polymyalgia Rheumatica (PMR) | Last Active: Aug 5, 2023 | Replies (18)Comment receiving replies
Replies to "Hello @5333, I would like to add my welcome to @emo and others. I'm glad that..."
@5333 and @emo
Oh my goodness! Yes!
@johnbishop is so right. You must hasten to a rheumatologist.
My GCA began with extreme fatigue and persistent and severe pain and tenderness of my scalp and the side of my face. It was so bad that I attended the hospital emergency department FIVE times before a diagnosis was made. By that time, I'd lost the vision in my right eye. Permanently. That was in 2019. I was immediately sent straight to the hospital from the doctor's office and given 3 days of prednisone by intravenous in order to stop blindness in my other eye. After about a year of prednisone I was put on Actemra (a biologic), and easier medication, by weekly injection. I've had constant Rheumatologist care, which is so very important, especially since GCA is such a rare disease that most of the medical world knows nothing about.
Only this week, my Rheumatologist newly diagnosed that I have Fibromyalgia, which he told me often goes with GCA. I've suspected it for a long time.e but I have so many other conditions I didn't want to seem like a hypochondriac and ask if I had that one too. Lol
It's been a long ride and certainly not a very nice one, but with a good Rheumatologist and your family doctor looking out for you, it can be done to your best advantage! Good luck!! Warmest wishes, Laurie