← Return to PMR diagnosed but now headache for almost a month.

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@johnbishop

Hello @5333, I would like to add my welcome to @emo and others. I'm glad that your symptoms started improving and the headache went away when you upped the prednisone to 40mg. GCA is not something to mess around with and if it were me, I would seek a referral to a rheumatologist as soon as possible. Here's some information from Mayo Clinic on GCA.

"Giant cell arteritis frequently causes headaches, scalp tenderness, jaw pain and vision problems. Untreated, it can lead to blindness."
--- Giant cell arteritis - Symptoms and causes: https://www.mayoclinic.org/diseases-conditions/giant-cell-arteritis/symptoms-causes/syc-20372758

@tsc @oztrax @artist01 and others who have experience with GCA may have additional thoughts or suggestions to share with you.

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Replies to "Hello @5333, I would like to add my welcome to @emo and others. I'm glad that..."

@5333 and @emo
Oh my goodness! Yes!
@johnbishop is so right. You must hasten to a rheumatologist.
My GCA began with extreme fatigue and persistent and severe pain and tenderness of my scalp and the side of my face. It was so bad that I attended the hospital emergency department FIVE times before a diagnosis was made. By that time, I'd lost the vision in my right eye. Permanently. That was in 2019. I was immediately sent straight to the hospital from the doctor's office and given 3 days of prednisone by intravenous in order to stop blindness in my other eye. After about a year of prednisone I was put on Actemra (a biologic), and easier medication, by weekly injection. I've had constant Rheumatologist care, which is so very important, especially since GCA is such a rare disease that most of the medical world knows nothing about.
Only this week, my Rheumatologist newly diagnosed that I have Fibromyalgia, which he told me often goes with GCA. I've suspected it for a long time.e but I have so many other conditions I didn't want to seem like a hypochondriac and ask if I had that one too. Lol
It's been a long ride and certainly not a very nice one, but with a good Rheumatologist and your family doctor looking out for you, it can be done to your best advantage! Good luck!! Warmest wishes, Laurie