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@lacy2

...am also sad to read of your child's pain and wish I could help... it's not a solution but do you think he might get some relief by sitting in a sitz bath of warm water placed on toilet bowl? ( I had to stop doing this because the warm water relaxed bowel and feces came out, but led to germs getting into female bladder and UTI .... but don't think this would affect a male - best be sure and check out first) if worth trying? .... best wishes for complete recovery and agree about the comment about checking Internet... J.

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Replies to "...am also sad to read of your child's pain and wish I could help... it's not..."

Thank you. & yes, we do sitz bath 3x day. I rotate each day either using baking soda and iodine in water because want to keep the skin from becoming infected. We literally are just changing his diet to an alkaline diet (but that is a job in of itself- I spent 2 days of just researching things that he can eat lol). But at this point, I’m willing to try anything that would help him.

For you, not sure if you are aware but they have the stem cell research that seems to be yielding very promising results. He’s too young as it seems like none of the trials offering this will take anyone his age. Only older teens.