How horrible, it's a mom's worst nightmare to see her child suffer. I'm not a medical person so I can only tell you what I do when faced with an unknown problem, google it. My husband had a lot of medical conditions last year, was in the hospital twice and saw 4 neurologists and got 4 very different diagnoses. I spent hours on the computer going down one rabbit hole after another. Finally, presented my thoughts & info. to the 4th neurologist who more or less went along with it and today my husband is fine. I wish all the best for you & your dear son.