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@kspowell

There is a great resource for this very rare cancer. You might want to check it out if you haven't already. So much information about ACC and it's treatments ..... from both experts and people who have ACC.
It is the Google Groups "Adenoid Cystic Carcinoma Organization Int'l" The ACC website is accrf.org.

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Replies to "There is a great resource for this very rare cancer. You might want to check it..."

Thank you for sharing, I've been looking for something and anything about this type of cancer and aftereffects I have.