← Return to Starting Ethambutol
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Replies to "I am taking all kinds of vitamins and supplements but I can tell the azithromycin is..."
Renee
Interesting, I also am in OKC.
I was diagnosed in August of 2022 with BE by my PCP.
First sputum tests done at NJH in October 2023. The sputum tests did show some infection.
I now go to Tyler to the BE pulmonologist specialist there. I just had a CScan showing some good changes and one new area of mucus plugging in the lower left lobe. The PFT is off the scale in the right direction.
All sputum tests done since 2023 have come back with MAI infection with all to my understanding showing mild infection. However, I was just given prescriptions for Azithromycin and ethambutol to take 3x a week. I also am one since childhood, my mother's beliefs, who prefers to supplement with vitamins. Therefore I will feel comfortable with taking the vitamin supplements on the days I am not taking the antibiotics. I haven't started yet, I want baselines of my eyes and hearing etc. before starting. My worst symptom is the constant need to clear my throat of what feels like and appears to be a combination of clear mucus, saliva, foamy bubbly moisture and sometimes obvious colored mucus and mucus plugs. I guess one could say that that is somewhat of an exacerbation, the constant need to clear the throat nearly all day and upon waking any time during the night. I just wish I knew for sure if it is the BE causing all this or one of the other possible health problems, hiatal hernia and therefore possible acid reflux (silent reflux for me...due to none of the obvious symptoms). Hard to know for sure. The need to clear the throat is worse immediately after eating. No fever, chills, sweating etc. etc. at this time.
Your post was begun in July of 2023. Would you have time to let me know what you did, what you do and did not do etc. and how you are doing etc. etc.
What doctor do you see here in OKC or is your pulmonologist one at NJH, Tyler, Mayo or other?
I don’t get another scan until September