I didn’t get the shots, I have a brain aneurysm, I wasn’t going to risk it. I’m happy I didn’t get the vaccine. But yes, that’s seems odd to say the least!

I’m sorry you’re going through it, I’m sorry for all of us dealing with it. It really does change your life as you knew it!

Good to know about the poles, Thank You! I think I’ll get some.

Yes, I too was previously very active. And had been all my life.

Even after previous other severe medical problems I came back. to a more active status.

Not this time.

@total99 I had a second stent added to my brain aneurysm 6mo this afternoon it was coiled and one stent. After that second stent, I now have OT, PBA, anxiety, cognitive dysfunction. I take clonazepam but I’m going to start on topamax because I can’t take the clonazepam during the day, I did wean myself off of the clonazepam and only last 3 days of being totally without it and my tremors were horrible. So went right back on. I’m suppose to take it am & pm 1mg. But like I said the daily dose I can’t deal with, I can’t drive if I take it. But my lower back and outer hips are causing me a lot of pain if I force myself to stand to long. So I thought I’d try the topamax, I was on it before for headaches after my brain surgeries. Don't remember any side effects and it’s not suppose to put weight on, it’s suppose to help loss weight to, which would be a plus since I put weight on the last 3 yrs with the medications I’ve tried for OT. Also, I don’t know if you know this, but just because we sit or lay down and we don’t feel the tremors…the tremors are still there, our brains are still firing all the time to try and correct the problem, so if you’re waking up with fatigue, that’s why. I wish they would look deeper into what would actually work for us. I so sick of shaking and so sick of taking pills. I wish you well! 🙏🏼🌺