Hi, leelees (@leelees)

I hadn't noticed your reply. I'm sorry. However, you don't say if you're seeing a neurologist. I'm guessing you are, or otherwise you might not be calling your numbness a neuropathy. I went for years with an ever-worsening balance, but not even my primary doc (who is a good primary doc) thought to suggest a neuropathy or to refer me to a neurologist. The symptom you do mention is numbness. My neurologist tells me I have some numbness in my feet, and that's why I have such poor balance, but so far it has not progressed. The advice it seems you're looking for will be best given by someone dealing with progression. I am sure someone will post soon. Stick around. You might try your question under a different topic heading. Or create a new topic. That might be best. Good luck!

Ray (@ray666)