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Do I have polymyalgia rheumatica?

Polymyalgia Rheumatica (PMR) | Last Active: Aug 5, 2023 | Replies (48)
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@debbieo123

So sorry Charlette that you did not get the relief you so need with pred. Yes, i agree you need to up the dose to at least 25mil like I have. I dont know what I would do with out this drug. I am also getting reflexology and message and that does help. Every morning I run to the community pool as my exercise to keep my muscles in shape. Somthing about water the distresses your emotions. My belief is to take one day at a time and do the best you can do. But please tell you doctor that you are not satisfied with that dose and I am sure he will up it for you. Let me know how it goes for you.

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Replies to "So sorry Charlette that you did not get the relief you so need with pred. Yes,..."
charlotte61 | @charlotte61 | Jul 29, 2023

Thanks Debbie -- and I'm glad the 25 mg is working for you! I agree that taking things one day at a time is the best approach. Looking ahead and wondering how many months or years this is going to last is just too overwhelming.

I think it's just going to take some time for me. I was feeling very discouraged yesterday, but today was my best day yet. Still stiff and sore in the mornings, but this is the first day in almost six weeks that I didn't have significant leg pain. So maybe it's just taking the 15 mg of Prednisone a little longer to work. Given the side effects of long term Prednisone use, I really don't want to go over 15 mg a day if I can help it. I already have osteoporosis and don't want to make it worse. I'm trying to watch what I eat, get some light exercise every day -- and most importantly, keep my stress levels low, as stress seems to really make it a lot worse. Deep breathing exercises and meditation are very helpful. I used to go swimming at the local pool before the pandemic, and am thinking of returning -- they have a nice warm therapy pool there that I think would be very helpful.

I hope things continue to go well for you!

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