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Orthostatic Tremor

Brain & Nervous System | Last Active: 6 days ago | Replies (20)

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@robina64

Hi, I w as diagnosed in December 2022, I’m 58. It’s sucks! Just the thought of going somewhere and thinking I may have to stand even a very short time, Anxiety takes over! I don’t like leaving the house, but I do. I’d like to know if the poles are working for you, because I’ve been thinking the same thing. One walking stick isn’t enough for me. I’m not fond of thinking I’m going to need a walker down the road, I was very active, it’s now made me very withdrawn. Not that I ever cared what people think, but I have to say, I’m uncomfortable now being out. Always looking to sit or lean on something is beyond frustrating. If I get stuck standing too long, it’s goes up my trunk and into my arms. They say it isn’t progressive, but they can’t give us a sound yes on that I don’t believe anyway! I only can hope I don’t get any worse.
Sorry for venting, I was just going to ask about the poles! I hope you found that they help you, if so, please let the rest of us know how you’re doing. 👍🏻

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Replies to "Hi, I w as diagnosed in December 2022, I’m 58. It’s sucks! Just the thought of..."

I have had it for about 30 years and mine has not progressed...it's possible, at least for me right now, don't know about tomorrow.