← Return to Squamous Cell Vulvar Cancer: Who out there has this cancer?

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@mezzojo

I started radiation treatment this week. So far so good, but I’m curious if anyone has any suggestions for how to deal with the side effects.

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Replies to "I started radiation treatment this week. So far so good, but I’m curious if anyone has..."

hi there!
this is just my story, so please take it all with a grain of salt

I had 30 rounds of Radiation, and it was targeted at the tumor (Obvs!) they may make a plastic shell to help centralize the radiation. They may give you tiny tattoos to help keep the plastic frame in position each time. the machine spins around you twice, and then you get down off the table. I also got 10 additional rounds of targeted radiation, with a new smaller shell specific to the tumor itself. It's the aftereffects that are hard to deal with.

The more radiation you have, the worse the burns get. Mine were half way down my thighs, and in and around my buttocks, especially in the folds of the buttocks into the top of the thighs. the skin sloughs off, and when it heals, it's hard and scaly. That's when you need the medicated moisturizing cream. I didn't really have much pain from the burns in the vulva area itself, but I also was partially numb there from having my lymph nodes removed. The feeling is coming back, but it will take a while.

I found that where my burns and tumor was, it was most comfortable to sleep sitting up on a couch, at a slight angle. the cushiness of the couch helped with the pain. But you may find sleeping on your side better.

stay on top of your pain meds, and make sure that they use a numbing gel on you before they start treating the radiation burns. I had lidocane.

please feel free to ask me anything, I want to help people however I can.

@mezzojo you might be interested in this related discussion:
- What Kind of Radiation Did You Get for Your Gynecological Cancer? https://connect.mayoclinic.org/discussion/types-of-radiation-treatments-for-gynecological-cancers/

How are you doing?