Are the symptoms weird?

Thank you and yes, I do have an appointment with a physical therapist.

Physical Hallucinations. False sensory input from malfunctioning nerves. It really is weird. Symptoms come and go, but lately they stay a bit. The worst for me is the morning. Sometimes when I wake up the sensations freak me out. Then I get up and it all goes away. Some days are worse, Wet, hot, cold, burning, tingling all mixed up. Definitely weird. They say it’s from my back. MRI shows severe lumbar arthritis. Collapsing discs. So lose weight, physical therapy and drugs….

Your symptoms have the same general theme as most of us, which is as you say, consistently inconsistent. Seems no 2 of us are 100% alike, from when we noticed first symptom, severity of onset, tests performed for any possible diagnosis or cause, or types and severity of many types of symptoms. This group is excellent in sharing experiences on what remedies or tools have helped with any given symptom. You have a lot you can explore here and hopefully get ideas. Good luck with your appointments - I hope they are able to narrow down the general underlying condition to help in the recovery and management of your systems. I hope you’ll share what you learn!

Please tell us, did your ability and balance problems go away or you can't walk now? I hope your problems are gone now. Thanks

Gleaned from the internet so grain of salt…….

The pharmacokinetics of gabapentin require regular dosing, it will not work if dosed “as needed.”

Can't walk(left side hemiplegia, no balance at all,I either fall back into my wheelchair,forward or left.inversion of my
entire left leg which results in either a scissor kick or getting caught on floors, carpet, rugs, bare, inversion in my ankle too, clawing if my toes especially with an afo on. I get tremors , massive sweating, back pain. Had left side surgeries in 1990,had all types of therapies from biofeedback onward. Had ambulatory therapies from canes-walkers. Manual wheelchair is the only safe bet for me. Since July 1st 1991 I've been able to live alone and independent because of it. I have no issues being wheelchair bound for life. Quality of life, a pain free life, a free life are important. Add to that it's difficult enough for the able bodied to live alone, to be disabled and do it is even tougher. I take pride in it. And a wheelchair is a source of mobility not inability. It is not a shameful thing to need one. The shame would be thinking you're too good to use one, or weak for using one. Arrogance and such pride are sins

I agree about a wheelchair being “a source of mobility, but inability.” I’m thinking of talking to my physiatrist about getting one myself, to help me when my symptoms are at their worst.

Why do you need to discuss something that is your choice with someone else like it's anyone's choice but yours. I've had people come up to me wanting a wheelchair for back pain relief, leg pain.. Why suffer to make others feel better about you, be more comfortable with you ? Are they going to share your physical pain, no

Similar symptoms for me caused by annular tears in the lumbar spine. Does your MRI show the same?

Oh, I agree with you. I planned to talk to my physiatrist (a physical medicine and rehabilitation specialist) because she works at a rehabilitation hospital. They have a specific Wheelchair and Seating clinic, so if she could write me an order to be seen there, they have PTs and technicians (it’s a large rehab hospital) who will meet with you to figure out what works best and potentially we could get the wheelchair rental covered by insurance. If I do it, there’s a chance we could get one more adapted to my condition for much less or covered by insurance than if I just bought or rented it on my own. (I would never have known that except my father had a stroke, and we thought we were stuck with the chair they discharged him with, and turned out that was not the case after his doctor sent him to the Wheelchair and Seating Clinic.)