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Anyone have cancer with unknown primary?

Cancer | Last Active: 1 day ago | Replies (129)

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@gisellef

Hi. Thanks so much for all of the information that you shared. I have a question regarding how you became aware of the condition. Did you have any unexplained swelling in a foot?
I have what appears to be unexplained lymphedema in my foot — which to add to the confusion, came on after a couple of bad orthopaedic injuries. It did not go away. Had a fairly complete medical work up with inconclusive results. Vascular insufficiency was suggested. Results also inconclusive after two tests. One doc said 6 veins not working. Another said no vascular issues but lymphedema, probably from orthopaedic injury to lymph tissues. Earlier this month had another test at a vascular clinic with a lymphedema expert on site. Diagnosis is lymphedema. Learned how to wrap leg overnight. Soon after, had a slight swelling /tenderness of neck lymph node. Also, lots going on in the pelvic area. Saw doc. Had blood work—no results yet. However, my leg is less swollen after wrapping at night but tender to pressure. Not sure this is normal recovery from lymphedema. Sometimes it feels as though there is a rush of fluids in the leg. Very odd. By the way, I have never been diagnosed with cancer nor had any nodes treated, biopsied nor removed. I do have non-symptomatic gallstones.
Do you have any thoughts or suggestions for me based on your recent experience? Any suggestions would be appreciated. Thanks and best of luck in your recovery.

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Replies to "Hi. Thanks so much for all of the information that you shared. I have a question..."

hi @gisellef, I didn't have any swelling in my legs or feet, in fact I couldn't tell my lymph nodes in my pelvis were enlarged. this became clear when I had a CT scan. Based on the scan they did a biopsy. By the time I did start treatment, I could feel my lymph nodes and they had grown, but still no other symptoms. There could be so many reason why in your case. unfortunately you need to be you own advocate and keep researching and looking for answers.