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Found PNET on tail of pancreas but told it’s nonfunctional

Neuroendocrine Tumors (NETs) | Last Active: Jan 14 2:54pm | Replies (97)
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@tinerobison

The waiting part is what I find frustrating especially if you have symptoms. My husband feels terrible everyday with no resolution to help him feel better and then they say his symptoms are not from the tumor but have no answer to what his symptoms are coming from and then they say come back in a year. We’re going for a 2nd opinion! We’re hoping Mayo brings us some answers. Has anyone on here gone to Mayo or MD Anderson?

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Replies to "The waiting part is what I find frustrating especially if you have symptoms. My husband feels..."
millds | @millds | Jul 30, 2023

Yes, I have/am going to Mayo Clinic in Rochester. Dr. Halfdanarson is my specialist.
They are very knowledgeable and caring. Navigating the world of an uncommon cancer can be extremely frustrating. Second opinion at best in the world can’t hurt! Hoping you find answers and support! 🙏🏻

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