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Profile picture for Bob, Alumni Mentor @grandpabob

Hi Ron, to add to what you are saying, I will add a third process, in the hospital that treats me, their approach to the IVIG infusions is; as long as you are not getting infections, we will not treat you. My levels hover just below 400, I have not had an infusion in three years. I am super cautious around people and never knowingly have contact with people that are sick. So far that has worked for me. I am super happy for you that you get the treatments, I am envious to say the least, that aside, I am even more thankful that I was able to undergo the Car T treatment, it has added five wonderful years to my life and hoping for many more.
Thanks for your response.

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Replies to "Hi Ron, to add to what you are saying, I will add a third process, in..."

Interesting conversation re IVIG. I underwent CAR-T December 22 and am still C free at 2.5 years. It was rough but came out the other side just fine. My IgG, platelets and WBC are low as well as other immunity numbers. As of late I have been suffering from sinusitis, actually 6 months now. Nothing really works. I am wondering how low the numbers have to get before treatment? I would hate to come down with something minor and it get serious due to immunity issues.