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Learning Past Cause vs. Quality of Present Life?
Neuropathy | Last Active: Aug 2, 2023 | Replies (52)Comment receiving replies
@ray666 Ray, the comment about the eyes did grab my attention. I've worn glasses for reading (only) for about 25 years, always perfect eyesight beyond 3 feet. When this PN started up about 8 years ago, my vision changed. I have distorted vision in left eye, and it was a head scratcher for my eye doc when I asked if this could have anything to do with a recent diagnosis of PN. Literally, after scratching his head, he said "I don't think so" without a convincing facial expression. You know, nose wrinkled up and eyes squinting. I now see a retina specialist and the doc does not think it is due to PN, it is just old age. Oh, OK...that makes me feel better! Frankly, I'm not so sure. The timing is just a little too coincidental. By the way, when my PN started up years back, it all started on the LEFT side...left toes, left foot, etc.
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Replies to "@ray666 Ray, the comment about the eyes did grab my attention. I've worn glasses for reading..."
Ed - My vision changed too almost immediately. 6 months later (at age 52) I suddenly needed cataract surgery, not a gradual progression to it (both eyes. not just left). My vision had become blurry as well, but mostly because they became so dang dry! They're still very abnormally dry. I know you once suggested Sjogren's, but my last Neurologist said No - since we already knew my Idiopathic PN was axonal sensory whatever that it can't be Sjogren's. He blames the dry eyes and my dry mouth I have it on the radiation I received, though that timing is definitely not right because my radiation came 4 years after the dryness and start of PN. My eye doc did think the eye dryness "could" be due to PN but also said that some folks (of all ages) just have more trouble than others.
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Ed – (@njed)
That's an interesting recollection you end with: " … when my PN started up years back, it all started on the LEFT side." In all the months you and I have been comparing PN symptoms, we almost always reveal similarities. This may be the first time we're finding a difference. As best I can tell, my symptoms, from way back, long before I got my PN diagnosis, were always symmetrical, giving me more trouble neither on the left nor the right. I imagine there's some neurological explanation for why some of us experience our PN on only one side (although it may progress to both sides) and why others of us, from the beginning, experience our PN on both sides with no sensation of difference from side to side.
Ray (@ray666)