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Did anyone undergo Car-T therapy for B cell lymphoma?

Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Nov 7, 2023 | Replies (76)
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@grandpabob

Hello @ronkampner , I am glad to hear you are doing well. Like you, my immune system is extremely low, as a result I am very careful around people who are not feeling well. I have not experienced mouth sores after Car T, interestingly enough I did not have them during my many rounds of chemo, which I am eternally grateful for.

Do you receive more than one IVIG infusion to boost your immune system or is it a series of a few?

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Replies to "Hello @ronkampner , I am glad to hear you are doing well. Like you, my immune..."
ronkampner | @ronkampner | Jul 29, 2023

Hello Bob,
Interesting question on the IVIG. I get the treatments at two different hospitals because I travel between two areas. In the Boston area they infuse me one at a time. When my IGG falls below 400, I get the infusion. That one infusion will bring me up to about 650. At the Florida hospital they give me a series of 3 infusions …. one a month for three months. That method brings me up to about 1300, which is a really good solid number. But gradually the numbers decline and I need to do it all over again. I think both methods work and are based on certain philosophical differences. I feel lucky to be able to get the treatments. .Where would we be without them.

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