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High or Fluctuating Chromogranin A Level: What does it mean?

Neuroendocrine Tumors (NETs) | Last Active: 6 days ago | Replies (175)
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@hopeful33250

Hello @peg152,

I appreciate the update with regards to the results of the PET. I would like to introduce you to another member who has had this type of surgery, @dawn_giacabazi.

You can also meet other members in another Connect support group. Here is the link,

https://connect.mayoclinic.org/discussion/pheochromocytoma/

Here you will meet, @janfam and @parve, just to name a few.

I hope this helps you in not feeling all alone in this decision you are facing regarding surgery. Will you post again with any other questions or concerns? Also, when you make a decision regarding surgery, please post again.

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Replies to "Hello @peg152, I appreciate the update with regards to the results of the PET. I would..."
peg152 | @peg152 | Aug 1, 2023

Doctor was very dismissive. Had thyroid out due to covered with nodules 10 years ago. Also was hospitalized last Feb for liver abscess. Have had sepsis twice before this. Blood sugar and blood pressure hard to regulate yet everyone is dismissive and when I asked for adrenal specialist, oncologist said he didn’t know Endo who specialized in adrenals.

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