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Multifocal Adenocarcinoma of the lung, continual recurrences

Lung Cancer | Last Active: Jun 14 6:32pm | Replies (472)
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@marymunzel

I have emphesema and have been on 24 hour oxygen since August.
I was diagnosed last January with multifocal carcinoma in both lungs.
Numerous nodules 4 are greater than 1 cm with the largest 14x14 mm.
Going back to Mayo clinic in Jacksonville in October for 4 month follow up and cat scan. Dr A mentioned robotic bx on one of the larger nodules. I have a total of 14 nodules but much smaller.
Last Monday I had a severe HA and blamed it on high blood pressure 200/104
Called my daughter who is a nurse practitioner and was told to test for covid... positive.
Started on molnupuravir, zpac, dexamethasone and Mucinex
Feel better but having increased shortness of breath
I'm concerned that covid could affect my nodules. Unable to find an answer on Google.

I had to have both hips replaced in 1994 due to AVN.
Had revision surgery in 2018.
2 weeks ago my right revision failed and hip slips out of joint with certain movements. Able to get around using a waker.
Appointment at UAB August 24th. Local Orthopedic doctor won't touch me...
Tried to get an appointment at Mayo but no appointments til after January and I can't wait that long. I have fallen twice in 2 weeks.

Any feedback on these nodules and covid is appreciated.
Thanks
Mary

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Replies to "I have emphesema and have been on 24 hour oxygen since August. I was diagnosed last..."
vic83 | @vic83 | Jul 29, 2023

Very sorry to hear about your difficulties. It is a lot to deal with.
I have Multifocal (in both lungs, but mostly right lung) and tested positive for Covid twice since my multifocal diagnosis (Dec 2021). I cannot answer about any impact on nodules, just my experience. Covid is a virus causing respiratory illness - so anyone with problem lungs does not want to catch it.
My first Covid was four weeks after my first VAT surgery despite my complete isolation. I noticed I was not as strong as I thought I should be week by week and I had developed a productive cough. They told me to get tested. I was positive. I was prescribed Molnupuravir (Paxlovid, much more effective, was not available). But M. cleared up my cough right away with no further complications. Nothing unusual on following scans. Interestingly I was four months out from my last Covid vaccine - the point where protection really drops off.
My second Covid occurred 8 months later. I knew I had been exposed so was tested and was positive. But I barely had a "headache". Again I was 4 months out from last Covid vaccine. I had a recent Stent placed so I was taking Plavix which meant I could not take Paxlovid drug. Mayo set me up with a monoclonal treatment. I was fine. My nodules have only done what we expected them to do.
Best wishes for recovery.

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Lisa, Volunteer Mentor | @lls8000 | Jul 30, 2023

Hi @marymunzel, you've been through so much, but sound strong and determined. Many lung cancer patients have been through Covid, and from what I understand, lung tissue can be impacted differently depending on the person. I have no residual effects of having Covid nearly a year ago (but I'm not monitoring any nodules either).
The wait-and-watch game is not always an easy one, but that's what commonly happens in these cases. Keep us posted on what you find in October. Did you have a previous lung biopsy, that led to the multifocal carcinoma diagnosis?

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