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Shingrix and peripheral neuropathy

Neuropathy | Last Active: Mar 12 1:36pm | Replies (530)

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@betty1949

I know about the itching and burning. It seems a long time since the shots to make a correlation. Do the doctors know what caused the neuropathy? Sometimes they can guess. Neuropathy is one of those fields that is evolving. For people and like and you, it is frustrating to be told that they don't know the causation and that the symptoms will only get worse. Still in my case I was able to lose weight, drop and A1C, and thereby have some reason to believe that I was delaying the onset of more severe symptoms. We do all we can to mitigate! Try that!

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Replies to "I know about the itching and burning. It seems a long time since the shots to..."

Hi again Betty. My doctor doesn't know the cause. We ruled out ALS and MS, ruled out autoimmune disease, B12 deficiency, toxicity to a medication etc. It may be idiopathic. I don't like that answer (stubborn) so I'm still on a search to see if I can find a cause and remedy it before I stop and just focus on symptoms. I'm looking at all the medications I take, and just discovered something about topical metronidazole (which I have used for years for rosacea) can cause neuropathy over time! So I'm going to stop that med and see how it goes.
Also, weirdly, my skin biopsies from my lower left leg (where I'm most symptomatic) were normal! My neurologist still thinks its small fiber polyneuropathy because he says it's diagnosed based on clinical presentation, and it can be patchy in the skin and may not show on the biopsy. I really like him and trust him. Very smart, listens well, and doesn't think I'm crazy.