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High or Fluctuating Chromogranin A Level: What does it mean?

Neuroendocrine Tumors (NETs) | Last Active: Jun 18 3:39pm | Replies (184)
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@peg152

PET came back tumors both adrenals and cysts on kidneys. Urine rest was Meg. Awaiting new Chromogranin A… past were 1507 a year ago and 14-4 a couple months ago. Not sure where to go for adrenal surgery. Mayo, Johns Hopkins or place in Tampa… Adrenal.com

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Replies to "PET came back tumors both adrenals and cysts on kidneys. Urine rest was Meg. Awaiting new..."
Teresa, Volunteer Mentor | @hopeful33250 | Jul 28, 2023

Hello @peg152,

I appreciate the update with regards to the results of the PET. I would like to introduce you to another member who has had this type of surgery, @dawn_giacabazi.

You can also meet other members in another Connect support group. Here is the link,
https://connect.mayoclinic.org/discussion/pheochromocytoma/
Here you will meet, @janfam and @parve, just to name a few.

I hope this helps you in not feeling all alone in this decision you are facing regarding surgery. Will you post again with any other questions or concerns? Also, when you make a decision regarding surgery, please post again.

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