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Covid and PMR surprise

Polymyalgia Rheumatica (PMR) | Last Active: Aug 21, 2023 | Replies (18)

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@ddmo

was diagnosed with pmr after covid vaccine. I have had the boosters also. i have been on pred. for two years and finally tapered off. after feeling fine (about 1 week)I started to relapse. It was worse than the original symptoms. Excruciating pain in thighs and low back. blood test showed increased sed rate after previous normal tests. I am back on 20 mg pred and guess that's how it goes. I do not like pred. as I do not sleep well. It gives me a false sense of phys capabilities as I am an avid exercise enthusiast. I worry if I am hurting myself and will be aware after tapering off this bout. Dr suggested Actemra infusion and we'll discuss next visit.

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Replies to "was diagnosed with pmr after covid vaccine. I have had the boosters also. i have been..."

Oh no just as u were better! Similar story for me...PMR after Pfizer vac. I think I am in remission after 2.5 yrs. All symptoms gone for over 2 week. Down to 5mg of Pred. Taken me 1.5 yrs to taper from 10 to 5mg. I sure hope this infusion helps. I am unfamiliar with it but will research. Thoughts with you!