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Severe SI joint pain and pain stimulators

Chronic Pain | Last Active: May 7 11:16am | Replies (61)

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@eddiestella1

Yes if the doc I’m seeing on Friday for a second opinion concurs with the other doc I will try out the stimulator. I’m hear though that many people get relief during the trial but when it gets permanently put in they don’t get the sane relief they did during trial so they end up removing it. This is my concern.

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Replies to "Yes if the doc I’m seeing on Friday for a second opinion concurs with the other..."

During the trial, I received about 89% relief. Permanent implant dropped to about 60%. ^0% was still pretty good. Lasted about 3 years, the just stopped giving relief. Of course, so did the pain meds. Who knows what happened?

I have Boston Scientific stimulator implanted. I have frequent adjustments to my programs as needed. I had the first implant in 2012. My doctor suggested I have an updated version in 2018. I watched my parents and brother go through more than one back surgery and have determined that is not for me.
I have small fiber neuropathy in both feet and creeping up my legs. I had two biopsies taken, one in the thigh and one in the calf that clinched the dx. I also have CRPS from a botched surgery on my foot that is spreading. In addition to that I have PAD which is moderately severe. I use a power chair where I can and use a rollator to go to apps. Walking is getting more difficult as I have stenosis in the lumbar area which just won't give up.
I walk in the pool 3 times a week and enjoy massaging jets of hot tube and then do my leg exercises my PT has given me. I am blessed to have an apartment in a beautiful senior independent living place. I feel the pool walking is helpful. My PT said to walk in the four foot end. I use a swim noodle to help with balance.
Sorry this is so long but I hope you find something helpful.