Welcome, and glad you found the group while you’re going through this. @johnbishop provided some great resources if you’re interested in learning more about treating PMR.

Unfortunately, PMR requires long-term use of prednisone until your pain and fatigue is completely or almost complete resolved, before you’ll need to start what’s likely to be a long and slow taper to get off the prednisone.

My father was diagnosed with PMR in May 2022. His highest prednisone dose was 30 mg, and he’s currently down to 6.25 mg.

Doctors will sometimes prescribe what sounds like a prednisone pack or low-moderate dose of prednisone to confirm a diagnosis of PMR—if you have immediate relief and meet the other criteria it’s very likely you have it. But the pain comes right back if you speed through the taper like that or stop the medication.

May I ask, did you see your PCP or other specialist? If you haven’t yet and if it’s an option, you may want to establish with a rheumatologist. They would have the most experience with this condition, but depending on your area, the wait times can be long, so some PCPs can and do help manage the condition.

What kind of instructions did your doctor give you after you completed the prednisone RX, and have you had a chance to talk with them yet?