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Pulmonologist in the Austin/SA Area and Airway Clearance Devices

MAC & Bronchiectasis | Last Active: Aug 20, 2023 | Replies (24)
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@susanp64

Thank you so much for this information. I ordered the book by Linda Esposito and look forward to reading it. I want to try many different means of controlling this condition rather than letting it control me. I’m trying acupuncture for the first time in my life next week. I don’t know if it will help, but I figure it’s worth a try!

Thank you to everyone who has responded to me. I’m very excited to see Dr. McShane. I feel blessed to have a world-class doctor living within 6 hours of my home.

This group has taught me so much in the past two weeks! I am so happy to have a great support system. Thank you seems inadequate. My heart is truly overflowing with joy because I no longer feel alone in this!

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Replies to "Thank you so much for this information. I ordered the book by Linda Esposito and look..."
Sue, Volunteer Mentor | @sueinmn | Jul 28, 2023

Thank you for the uplifting post!
Many of us came here, new to MAC and Bronchiectasis, scared because we never heard of it before, read all the dire tale of it being "incurable" , the stories about the horrors of treatment. Even our doctors didn't seem to knowledgeable (over the past 5 years, I taught my primary a lot about it - thankfully she loves to learn.)
First we tip-toed in and began reading. Then we started knowing what questions to ask and began asking them. And not too much later, we were able to share what we learned, what worked for each of us, and were able to begin encouraging our fellow travellers!

As you meet your new doc, explore treatments, and read more, always remember there are nearly 1000 of us here, each with a unique experience to share. In chatting with us, you will become more comfortable with issues surrounding airway clearance, exercise, medications (other than the Big 3), precautions to take, and how to live your life.

The very best advice I got, early on, from my ID doc was "Bronchiectasis is a disease you live with, not die from. Do what makes sense for you to stay healthy, then go out and live your best life."
Sue

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