Severe SI joint pain and pain stimulators
Has anyone had severe SI joint pain from failed surgeries and had success with being in less pain from the Medtronic pain stimulator?
My pain is on a level of torture pain. I need relief. I’m on hydromorphone and it doesn’t even touch my pain. It’s awful.
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I had my L4 & L5 disc fused. Last Oct is when they fused my L4 disc and I guess it’s still not fused all the way yet. But I know my pain is coming from my SI joint. It’s debilitating.
It’s the same pain I had for years but continues to get worse.
It’s too bad CBD doesn’t last long. I take hydromorphone every three hours and it doesn’t even touch my pain. It does help me be able to get up in the mornings. This med is what docs give people after major surgeries for pain relief. So when I had my surgeries last fall I didn’t have much pain relief after my surgeries. They also ripped hardware out of my SI and added new hardware at the same time they fused my L4 disc.
I started the process of getting the implant and took all of the testing including the three hour questionnaire and I never heard anything afterwards.
You know what they say about doing the same thing over and over and expecting a different result. I have an L5-S1 fusion 6years ago. No help at all. I read somewhere that spinal fusions are one of the biggest cash cows for orthopedic surgeons. If I could, I would never have that surgery done. So, how do they explain it? "Failed back surgery syndrome". Handy excuse.
Your sad story reminds me of the mechanic trying to fix the problem with your car. Except he doesn't know exactly what the problem is so he tries a half dozen fixes, none of which work. Then, on the 7th or 8th try, he stumbled on the right fix. Of course, meanwhile you are getting charged for all the non-productive hours of hit and miss tries. He could have consulted with other mechanics, or searched the web, but pride prevented him from doing so. Too bad, too sad.
It really is sad. I’m worse off now than I was before he initially did surgery on me. It has ruined my life. My quality of life is not the same. I suffer all day and look forward to going to bed at night. It’s the only time I’m not in pain when I sleep. I have no problem sleeping as I’m exhausted being in pain every minute of the day, all day long.
I am pretty good when I am lying down or sleeping. Otherwise it's burning feet, lower back pain, painful buttocks when I sit. Apparently, I must be the only person in the history of the world to have these problems. Ha! Keep searching. You have to be your own best advocate. It only takes one doc who has seen your condition before and knows what to do.
God bless and prayers for success.
Did you ever find the “one doc”? I actually have similar symptoms. No answers yet.
Negative. If I had bee Tom Brady, I would be as good as new by now.
Ditto ! Let me know what works
Thank you. I am sorry you are in so much pain too. Did you have your SI joint fused too?
Also do you have neuropathy in both feet? I do. They don’t know why I do. They claim it’s not from all the surgeries I had in my SI and back. It started out in one foot but I now have neuropathy in both feet. Had all the test done and I’m in that percentage where they don’t know why I have neuropathy in both feet.
I wish you the best of luck and I hope you start to feel better.