← Return to A good online Psychologist for bronchiectasis patients?

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@sueinmn

@lpfranco Welcome to Mayo Connect - caregivers are a very important resource for those of us with chronic conditions. It may be very difficult to find a counselor knowledgeable about NTM or Bronchiectasis, because it is a rare disease. But I get great insights into living with my lungs from my pain management counselor. So perhaps you can find a counselor whose specialty is working with those with chronic diseases and conditions.

I don't personally know of support like you are requesting, but I really think someone else will step up. In the meantime, here are some resources you can look to:
The hospital your ID or Primary Doc is affiliated with will probably know of local resources. If they have a Lung Health, Heart Health or other specialty care center, you can contact them yourself and ask to speak to a social worker or care coordinator to find help.
The American Lung Association, lung.org has lists of resources.

Do you think your wife would be interested in our support group here, or would reading about others make her more anxious?
Sue

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Replies to "@lpfranco Welcome to Mayo Connect - caregivers are a very important resource for those of us..."

Hello and thanks so much for your interest. She recently added this support group. I think it will help. This is by far the most interactive and informative group I've found so far and we've tried a few. Thanks for your suggestions as well. I'll keep you posted on what we find.