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Tymlos side effects I've encountered

Osteoporosis & Bone Health | Last Active: Oct 27 11:00am | Replies (284)

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@marciagb

I was on Tymlos at only 4 clicks for about 4 months (after being at 3 for a month)… then was was able to go up 1 click every couple weeks without any worsening of symptoms and am at 8 now. I still get what I call a “bad head rush” for about 15 minutes, along with tachycardia, but that is all. At my specialist’s encouragement, I didn’t rush it. She was happy at any level I was on, as keeping with it was better than quitting and she was optimistic that even a lower dose would be beneficial. So do what you can and kudos for persevering.

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Replies to "I was on Tymlos at only 4 clicks for about 4 months (after being at 3..."

Thank you for your kind and encouraging words. It has been a hard adjustment for me--the tachycardia was my big issue. There were a lot of calls to the Tymlos nurse at the beginning. And, yes, my endocrinologist is the same: happy at any level ( I get a "that's great!" when I report my slow progress), and optimistic that something is better than nothing. I do try 5 clicks at least once a week in the hope that I'll be able to maintain that eventually, but so far it hasn't happened. If you've been following this thread, you may have seen that I also mentioned my hair started falling out (it's clinically called, ahem, "hair thinning," not "hair loss,"), and that was another issue for me in not wanting to try to ramp up any more. It seems to have slowed down, but it's still distressing. Re: the tachycardia: I've managed it by elevating my legs after the shot. The Tymlos nurse suggested I try it, and it absolutely helps. Perhaps it might help lessen your post-shot symptoms, too. I hope so.