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Longcovid Lymphatic Dysfunction

Post-COVID Recovery & COVID-19 | Last Active: Jul 26, 2023 | Replies (18)

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@mitchmysterysymptoms

So. An Update...

Today, my NEW REPLACEMENT Doctor showed me and gave me a copy of 'THE ALGORITHM' we are now on ( and for those unaware, 'your medical problems are now managed by algorithms' directing your doctors actions in response to YOUR SYMPTOMS - so - you really need to find the right doctor for you and on top of that must ensure he will be following the algorithm most-likely to have a positive impact on YOUR CONDITION. Disclaimer: I am not a medically-trained person nor am I selling anything. So SEARCH TERM, NO QUOTES ----> ' algorithm for the evaluation of clonal cell disorder ' Now, I repeatedly noticed 'EPSTEIN-BARR VIRUS (EBV)' ~ aka ~ 'MONONUCLEOSIS' scattered throughout medical literature found in my search results related to ' THIS THING '. I did have 'mono' back in, like, 1970. I decided to mention it in the notes I gave my new doc first visit ( 'Executive Brief' ) about what I hoped to accomplish - my primary 2 'conditions' hoping to find root casue, of ; 1) Fatigue 2) Chronic Inflammation of Lymph Nodes, 'Throughout' Now, some of the specifically-related terms and phrases related to this, include; MGUS, SMOULDERING MYELOMA and MULTIPLE MYELOMA and 'EPSTEIN–BARR VIRUS–ASSOCIATED LYMPHOPROLIFERATIVE DISEASES' Because, like, I don't even understand how I couldn't find this on my own using search terms I'd been using but I'ma guess 'algorithms' determined what I was able to find via internet, as well. For those of you who KNOW you've had 'MONO / Epstein-Barr' and 'on this board and have swollen lymph nodes persisting - maybe waxing and waning - #1 - you might not even notice the ones in your groin and behind your knees are also 'swollen' (because I didn't, for months, until I figured out why my kneecaps were tender and 'nuts' were being 'extended' and interfering with my sitting). Who knew?? Too painful to kneel - happened when my lymph nodes were 'pumped' - 'nuts' get in my way sitting down, oddly and unusually - and... when my lymph nodes are swollen - which FINALLY caused me to consider maybe nodes I never really even considered for 60+ years. It was always about Strep Throat, for me, vice 'LYMPHADENOPATHY' ( one of the applicable terms used to describe this condition ). So back to the top - if any of this rings true with you, I recommend 'Googling' the pages with THAT PHRASE to get 'Medical Algorithm' then 'Wikipedia' for 'Smouldering Myeloma' and 'Epstein-Barr Virus-Associated Lymphoproliferative Diseases' POINT BEING for ME ---> Mutual Goal is 'Stopping The Inflammation' and per 'Smouldering Myeloma' they do that by stopping the dividing of 'cloned defects' running amok (my translation) which are pumping up the holistic lymph system. And by the way, my brainfog seems to ebb and flow with the most profound stages on the 'perpetual expansion/contraction cycle' of 'The Nodes'. Past 3 days I've been 'Walking Dead' (and driving dead to and fro the doc today). My own private lobotomy comes and goes - with lizard brain and abstract reasoning functions seemingly fine. It's those periods where I'm, like, responsibilities ?! Family ?! Demands of others ?! Shower ?! Who cares ! I'm just gonna die anyway ! So anyway I'm kind of stoked about this new direction, for multiple reasons most of which have to do with working hard at identifying as many little things 'going on within' as I can - researching by words/terms/links - finding patterns emerge - not finding anything I felt I could personally 'align with' (yet) in a way I might use to benefit me - then having these presented to me, today. Shocked I missed them prior to today - excited by what I find in them all. THAT'S THE NEWS FROM LAKE WOBEGON.....

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Replies to "So. An Update... Today, my NEW REPLACEMENT Doctor showed me and gave me a copy of..."

I repeat:

' algorithm for the evaluation of clonal cell disorder '

COPY / PASTE into your browser if you have chronic inflamed lymph nodes possibly related to long COVID